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Coming Out Crazy



  • After 30 years as a reporter, feature writer and columnist for The Toronto Sun, Sandy is now a freelance writer, public speaker, mental health advocate and Seneca College instructor. You can learn more about Sandy here, and contact her here.

    "Blessed are the cracked, for they shall let in the light." Groucho Marx

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November 20, 2009

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Jessica

I was recently, as an addition to my bipolar diagnosis, diagnosed with having asperger syndrome. It came as a huge surprise to me. I was NOT the person that I imagined a person with asperger to be like. In all due fairness I had imagined that someone with bipolar disorder to be different too.
I fell into distress. AND another depression. More medication proved too much for my liver and was discontinued. Then I met a man that guided me to a support group and with a great sense of humour it has become easier to accept. Among other things I was introduced to the most funny set of short stories, among them what could have been the local Asperger support group answering machine message ("the swiss army knife fan club is here and might answer the phone on wednesdays between 1.14 and 6.41 in the afternoon").
Humour is wonderful, allows self distance and coping. And laughter is healing. I'm sorry for your loss though. Death always comes untimely.

Sandy Naiman

Hi Jessica,

I am so sorry to hear that you're struggling with your diagnosis, but please remember that you are still the person you have always imagined yourself to be.

YOU ARE NOT YOUR DIAGNOSIS!

As for humour, I'm thrilled to hear that you've found a support group with a sense of humour. I would love to know the title of the short story collection to which you refer. It would be lovely to share it with everyone here at "Coming Out Crazy"! Would you let me know?

As for humour, you're so right. It's the best tonic in the world. For me, humour and being able to laugh, especially at myself, is a godsend. I couldn't cope without my sense of humour and my husband lives to make me laugh.

Finally, thank you for your kind condolences. I'll tell Marty about your thoughtfulness. We both truly appreciate it.

Take care and cheers,
sln

Jessica

The short stories are in another language but I'll translate the "answering machine message" for you.
The diagnosis does explain alot of things but since I've had Asperger all my life it is a part of my personality. I just thought everyone perceived the world as I do. Among other things I have a minor variant of what is called synethesia. It is a difficult concept to explain but mine involves seeing months, letters and numbers in colours and textures.

The neuropsychiatric testing was extensive but nothing was made out to be strange. They had just heard it all and in that way it was comforting although I was just exhausted after each occassion. For anyone to assume that it was a haphazard kind of business where they just yanked some stuff together and then came to say that I had Asperger, nothing could be farther from the truth. I am returning more and more now to how it was before but it was something of a shock. Asperger? no no no, I DON'T think so. But as the dust settles having a diagnosis turns into something helpful in your everyday life, I have always noticed some cognitive shortcomings such as bad memory. Time has always been a tricky concept to me, I arrive too early or too late.

After the diagnosis I have gotten some cognitive aids for my home such as timers and clocks and other cognitive aids. VERY useful. I wish more were known about these among health professionals. I am sure people with bipolar diagnosis etc., could benefit hugely from them as well. Now I have a medicine box that beeps at the appropriate time when I am to take the medication. Before it was a hassle to remember.

Sandy Naiman

Hi Jessica,

Please forgive my late response. I've been battling the flu, which seems to play "hide and seek" with me. I start feeling better, go back to work, get sick again. This is really silly.

Sometimes I think we are our own "normal" and if you see the world a little differently, so that's okay if you can live with it. It sounds like you are adapting but it also sounds like maybe, perhaps, it's possible that you may have synesthesia. I'm just surmising. I'm no diagnostician. It's just a suggestion.

Definition of Synesthesia from MedicineNet.com

"A condition in which normally separate senses are not separate. Sight may mingle with sound, taste with touch, etc. The senses are cross-wired. For example, when a digit-color synesthete sees or just thinks of a number, the number appears with a color film over it. A given number's color never changes; it appears every time with the number. Synesthesia can take many forms. A synesthete may sense the taste of chicken as a pointed object. Other synesthetes hear colors. Still others may have several senses cross-wired.

"Estimates of the frequency of synesthesia range from 1 in 250,000 to 1 in 2,000. People with synesthesia are 6 times more likely to be female than male. Most synesthetes find their unusual sensory abilities enjoyable.

"People with synesthesia often report that one or more of their family members also have synesthesia, so it may in at least some cases be an inherited condition.

"It may be that synesthesia arises when particular senses fail to become fully independent of one another during normal development. According to this school of thought, all babies are synesthetes. Synesthesia can be induced by certain hallucinogenic drugs and can also occur in some types of seizure disorders.

"The word synesthesia is a hybrid of Latin and Greek - the Latin syn- (together) + -esthesia, from the Greek aisthesis (sensation or perception)."

Here's another link:

http://en.wikipedia.org/wiki/Synesthesia

As I understand it, that's not a psychiatric disorder, but a rare brain condition. It's the way you perceive. They way you were born. You are not alone. I saw an item about Synesthesia on the July 12, 2009 episode of CBS "Sunday Morning". I couldn't find that segment – there's no archives that I could find, but I found many other interesting links. There's tons of stuff if you "google" – synesthesia

Here's another CBS News story, an older one:

http://www.cbsnews.com/stories/2002/01/08/60II/main323596.shtml

I wonder. Maybe you should investigate. Just a thought.

Keep doing whatever you're doing if it helps you. But perhaps this might be a link to another way of considering your condition. Trust yourself. You know your mind, brain, and the way you perceive more accurately than any doctor. "Know thyself," Descartes says. Sounds like you know yourself well. "Trust yourself, too!"

Try to forget about the labels if you possibly can. They are categories. People don't belong in categories. They're labels. Labels are for jars, not people.

We're all human beings. We're all unique. We're all special. We're all equal. We all perceive the world a little differently. In some cases a little more differently. But I repeat, depending on our unique genetic make up, environments, experiences, and so many other factors, you are exquisitely "you" and there's no one else quite like you. We all perceive our worlds and the world differently.

At least, that's how I see things. Just something to think about or consider. That's all.

Good luck.

Cheers,
sln

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